Welcome to our CaringBridge website! In 2018, Mark was diagnosed with Frontotemporal Degeneration. We are planning to use this site to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement! If you haven't yet, check out the "Introduction" post on the Journal page as a great starting point for more details on FTD and Mark's journey.
Frontotemporal degeneration (also called frontotemporal dementia or FTD) is a terminal, neurodegenerative brain disease that affects mainly the frontal and temporal lobes of the brain – the parts responsible for things like judgment, empathy, emotional control, inhibition, personality, and logic. Mark has a genetic behavioral variant (MAPT bvFTD) and like Alzheimer's and other types of dementia, he has significant memory loss, especially with short-term and mid-term memory. There currently is no prevention, treatment, or cure.
Mark has been in memory care since April of 2019. His daughter Keri is now his legal guardian, and she and his son Caleb continue to be involved in his everyday care as much as possible.
This site will be the story of the family's care giving journey, told from the perspective of Keri, with occasional contributions from Caleb. Check out the "Journal" page for more of our story and the "Ways to Help" page for more info on how to bless Mark and the family.
For further info on FTD, please visit the Association for Frontotemporal Degeneration on the AFTD website: http://www.theaftd.org/