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May 12, 2016 Latest post:
Jun 7, 2016
Just to give everyone a brief story on Malachi as some of you already know Malachi has had cerebra palsy since birth after we found out about his brain bleed. Since Malachi was born he has had quite a journey. Starting at about 6 months old Malachi developed seizures and had a feeding tube placed shortly after that. With not being able to walk or sit by himself her developed severe scoliosis which pulled his hips out of the sockets and caused pain which led him to hip surgery in Decemberof 2013 to put his hips back into the socket. After this surgery he was laid up for about 16 weeks which then led to a lot of set backs in his life that we had worked hard at getting to. He used to stand with help and take a few steps in his walker and sat up alone for short periods of time and held and played with some toys. Being laid up for so long he lost all his strength and muscle so he no longer can bare much weight on his legs, sit alone or hold much with his hands anymore. Therapists and Justin and i have been working hard to get that strength back but he has had many respiratory issues since 2013 so a lot if hospital stays or being laid up at home so he hasn't got the therapy or strength he has needed to get back to where he was. In a child like Malachi being laid up for 16 weeks sets us back to square one which took us years to get him to. In January 2016 he had spinal surgery to fix his scoliosis. In February he started having respiratory issues again and was admitted into the hospital, then in april he was admitted again for respiratory issues along with Influenza B which kept him in the hospital for 11 days and when we were discharged he never really recovered. On may 6th Malachi was admitted for respiratory issues again and tested positive for human metapneumovirus which now led us to where we are now. We will try to keep everyone updated as to whats going on with Our Sweet,happy,long eyes-lashed, thick curly dark haired little boy. I could go on for days telling you all how he has changed our lives For the better. His big bright smile and laid back personality is the one of the main things that keeps me going everyday. If I'm having a bad/down day as i think we all do just seeing his smile or holding him tight can bring my whole day around he has made me appreciate life and changed me in many ways faith especially. So please keep our Sweet Malachi in your prayers I have laid our situation and Malachi in gods hands and trust in him to get Malachi and our family through this journey. Justin and I are very thankful to have such amazing people in our lives to help us get through this so thank you all and we love you. Justin and I have been praying daily with Malachi and will continue through out our hospital stay (and at home as we always do with all of our kids) the power of prayer is truly amazing and sure has helped justin and I get through each bump in the road as a team.