Maia Rivera

First post: Feb 17, 2022 Latest post: Apr 10, 2024
Maia was born with a congenital heart defect, called a vascular ring, that had to be repaired at 3 weeks old. During her procedure, there was a complication causing one of her vocal cords to be paralyzed. With her vocal cord paralysis, Maia developed trouble eating, drinking, and breathing. Because of the ongoing care Maia would require and multiple out-of-town doctor visits a week, her mother left her job to care for Maia full time. When she was only a couple of months old, Maia was given a surgically implanted feeding tube that still provides her with her full nutrition. Throughout her first year of life, multiple surgical attempts have been made to help Maia breathe better, but none of those attempts have been enough to correct the problem because of her constant struggles with reflux that is causing poor healing.  At the beginning of February, Maia had an adverse breathing event while she was playing at home. This event led to Maia's most recent hospital admission at Lurie Children's Hospital in Chicago. This account has been created to share the most recent updates and progress as Maia continues on her journey to better health.