Aug 28, 2017 Latest post:
Jan 28, 2018
Dear Family & Friends,
We've started this page to share our journey with you as we wait for a new heart, and continue to hope that in the meantime, Madi's heart begins to heal.
This journey started on Aug. 12 when our sweet Madi stopped breathing at just 16 days old. Luckily we were with her when it happened. First responders arrived very quickly and started CPR which saved her life. She was then transported to Methodist Hospital where they stabilized her until Minneapolis Children's Hospital Transport Team arrived for her. We then spent the next week in the NICU while they ran every test imaginable to figure out what caused her incident that Saturday evening. After many tests, including genetic testing, they diagnosed her with Heart Failure. We were then moved from the NICU to the Cardiovascular ICU at Children's where they began to try and improve her heart function. After her MRI on Wednesday morning (8/23) they discovered that the scar tissue in her heart was more representative of a blood clot to the left ventricle. Given this new information Children's suggested that we move to a hospital where Madi could be placed on the national transplant list to receive a new heart. So, on Thursday (8/24) she was transferred to the University of Minnesota Masonic Children's Hospital. On Friday (8/25) Madi was officially listed as a status 1A on UNOS for a new heart. As we know more we will update with journal entries.
We are forever grateful for the City of St. Louis Park Police, Fire, and EMTs who saved her life, and for the staff at Methodist and Minneapolis Children's Hospital for getting her to where we are now. We feel so fortunate to begin this next step of our journey at the University of Minnesota Masonic Children's Hospital, the doctors and nurses here have all been so wonderful.
We appreciate all your support, prayers, and words of hope and encouragement. We need your love and we feel it everyday.