Mar 31, 2021 Latest post:
Apr 19, 2021
Hey Family and Friends! We thought this would be a good way to keep everyone updated about Madelyn. Thank you for the food, gifts, and most of all prayers! Here's a little about Madelyn.
Throughout the pregnancy, Madelyn's long bones measured a few weeks behind the rest of her body. The specialists suspected some form of skeletal dysplasia, with osteogenesis imperfecta being their best guess. She was born on March 12, 2021 and spent 10 days in the NICU at Wellstar Cobb. They tested what seemed like every possible body system to see if anything was off. All tests came back normal, including a full skeletal x-ray, revealing no breaks or fractures. However, she rarely moved her right leg, so the nurses and doctors knew something was wrong.
Once discharged, we took her to her pediatrician. During the course of the exam, the doctor examined her hips, which made Madelyn extremely uncomfortable. The doctor was alarmed and sent us straight to get an x-ray on the leg, which revealed two hairline fractures on her femur and another on her tibia. Two days later, during a diaper change, I (Patrick) felt a pop in her left arm. She was again extremely uncomfortable, and we took her to CHOA's ER at Scottish Rite. X-rays revealed two more fractures in her humerus and one in her wrist.
So that's the beginning of the story! Check back for updates in the journal.