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Sep 6, 2016 Latest post:
Sep 17, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
On August 26, 2016, our 3 year old little girl, Madeline ("Maddi"), was diagnosed with acute lymphoblastic leukemia (ALL). After the initial phase of treatment, a bone marrow biopsy revealed that she still had traces of leukemia (MRD positive) and so she was classified as very high risk. Despite another phase of chemotherapy, we were still unable to eliminate all traces of leukemia and so we had to move forward with a bone marrow transplant. Unfortunately, just 6 months after her transplant, Maddi relapsed.
At the beginning of 2018, we traveled to Philadelphia to receive the new and groundbreaking immunotherapy treatment (T cell therapy) at the Children's Hospital of Philadelphia. We spent 6 weeks there and agreed to return every 3 months for 2 years. Unfortunately, Maddi only stayed in remission for 6 months. Just before our trip back to Philadelphia for her check up, we learned that Maddi had relapsed again. This time her leukemia mutated so that her super cells and the new therapy in Philadelphia would no longer be an option.
Now we are in the process of trying to get her back into remission, so we can move forward with a second bone marrow transplant at the U of M. This has been such a heart-wrenching experience for our family, filled with periods of joy, as well as incredible sorrow. Nonetheless, we continue to hold onto hope that we will be able to find a cure for our little Madeline.