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9/6/2016 Latest post:
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
On August 26, 2016, our 2 year old little girl, Madeline ("Maddi"), was diagnosed with acute lymphoblastic leukemia (ALL). After the initial phase of treatment, a bone marrow biopsy revealed that she still had traces of leukemia (MRD positive) and so she was classified as very high risk. Despite another phase of chemotherapy, we were still unable to eliminate all traces of leukemia and so now we are preparing for a bone marrow transplant at the University of Minnesota. She will be on a drug (Blinatumomab or "Blini") for 28 days to achieve MRD negative in order to proceed with transplant. Her big sister, Vivian ("Vivi"), who is 4 years old, is her match and will be the donor for her upcoming transplant.
During her transplant, it is anticipated that we will be inpatient at the U of M hospital for 4-8 weeks. Once we are discharged from the hospital we will continue with frequent clinic visits (starting daily), for up to 100 days from the day of her transplant. Then our clinic visits will become less frequent, but she will still be monitored to ensure a smooth and full recovery since she will still be susceptible to illness for quite some time after transplant.