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11/20/2016 Latest post:
This is the site that I will be posting my daily journals, thoughts, emotions and medical updates on. This hopefully will keep everyone in the "loop".
I love you all, Lyssa
Hello, and thank you for taking some time to read my story. I will attempt to update you daily on what's going on. To all of you who know me, I feel like I need to first apologize for not sharing and keeping you in the loop from the beginning. I've always been a fairly private person and I don't like to complain about my health. I now see that was wrong and selfish and I'm sorry. So let's start from the beginning. In 2013 I was still living in Maryland at our farm house with my two youngest kids( Diana and Justin) at that time I was diagnosed with lupus and had been dealing with pain and fatigue for about two years.
I was sweeping the back porch and suddenly felt very nauseous. I began throwing up blood. I ran inside and continued to vomit blood. My son rushed me to the hospital. I had grabbed a large pot from the kitchen and continue to throw up blood until we reached the ER . I had lost most of my blood and almost died that day. After blood transfusions and lots of testing the doctors at the hospital told me I didn't have lupus. I had esophageal varices that had ruptured due to cirrhosis of the liver. I had to have several surgeries to ban the varices in my throat, to prevent from bleeding to death. I went to a gastroenterologist that did further testing and diagnosed me with autoimmune hepatitis cirrhosis of the liver. I then moved to California to be with my family it took quite some time to get a liver specialist. And my condition has drastically hurt my liver. My diagnosis is now primary billary cholangitis. My liver is classified as a Class C with the life expectancy of one to three years. I am usually in pain daily but I'm a very optimistic person. My faith is strong and I have an incredible support group. My incredible partner Denise has worked around the clock getting me into a stem cell program that can heal auto immune disease and strengthen my liver. We are now in desperate need of funding for the procedure which is scheduled for November 30th at the California stem cell Institute. Your prayers and donations are greatly appreciated. I love you all and will keep you updated. Love Lyssa