Lyla Grace Stanley

First post: Feb 10, 2018 Latest post: Feb 11, 2018
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Originally Posted on Facebook 2/8;
Friends, family, and coworkers; it is incredibly difficult for us to share some of this information with you all.

Nicki and I have waited to publicize anything while we have been awaiting further answers.

Our Lyla Grace was born Sunday at 2:28am.

There have been many tests done and most have conclusively shown that functions are working properly.  There have been several working theories but sadly, we do not know what exactly is happening to our baby.

Lyla was born with a stridor, which is a complication involving her breathing, thankfully one of the nurses quickly noticed this.  After realizing Lyla had a stridor, her situation quickly escalated and she was transported to the Neonatal Intensive Care Unit (NICU) of the hospital. Unfortunately, to our dismay the doctors realized this health concern was more than they were equipped to handle in Fort Collins. From there we began making arrangements with Flight for Life to transport her to Children’s Hospital in Denver where Lyla is presently.

At this time, Lyla has idiopathic bilateral vocal cord paresis / paralysis. The cause of which is unknown and the path forward is even less certain as this is not common.  She is on a breathing machine and because of this she needs a feeding tube because of the concerns of aspiration.

One of the most difficult steps that we have been processing through this is that we are not expecting to bring Lyla home this week or in the near future. She will remain in the NICU at Children’s Hospital in Denver until further notice. We are thankful that she is surrounded by an amazing staff and specialists to guide us through this journey. There will be many long drives to and from the hospital followed by even more sleepless nights... we are trying to take things moment by moment.

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