Jul 24, 2019 Latest post:
Jul 31, 2019
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Lyla Jordan Jandrey was born on June 18th, 2019 to loving parents, Chrystal and Ben by a planned caesarean section. Though born just a little early, Lyla has been flourishing and basking in the love of so many adoring family members and close friends. It is our heartfelt hope that our family and friends would support us in this difficult time as we share the news of Lyla’s sudden and unexpected time of trouble. Recently, Lyla developed a fever, and soon after, began having seizures. Lyla and Chrystal were air-lifted from Duluth to Children’s Hospital in Minneapolis, MN to pursue advanced stabilization and diagnostics. Several diagnostic tests have been performed(including MRI’s, spinal taps, and DNA screenings) without much clarity as of yet. Lyla is still in critical condition so her stabilization is of utmost importance at this time. Lyla had been started on several anti-epileptic drugs, but in the face of those, was still having break-through seizures. Her critical care team, amazingly, intervened and decided it was best that she be sedated and manually ventilated to control her airway and protect her brain from further seizures. Her anti-epileptic drugs are continuing along with her sedation, IV fluids, and other therapies to make her comfortable. She has a feeding tube placed so she can get nutrition, and a venous central line is also placed so she doesn't’ get poked anymore for blood tests. She is currently being treated for her symptoms as well as any possibly causes to her clinical signs(ranging from infectious to autoimmune). This will be a long road for Lyla and her worried family. We are asking for prayers and support, especially for peace and patience as we wait in this time of fog and uncertainty. May the Lord be our All-Mighty physician and guide the medical team surrounding Lyla’s care. We will update with test results and progress as we can. Thank you for your prayers! -Sammy