Welcome to Lukes site, we are using it to keep everyone updated about his health. Luke was born with lipomyelonemeningocele https://www.columbiaspine.org/condition/lipomyelomeningocele/
a tethered spinal cord. His first surgery at ten days at Childrens Mercy Hospital released his spinal cord and replaced it in his spine. Now his spinal cord is re tethered and he needs surgery again to release the cord. He will be having that surgery March 16th. He is currently having testing. I will do my best to update this site as I can. Thank you for your thoughts and prayers. Caringbridge may ask you for donations to support the site, we appreciate the site but these requests are not from us.