Lucas Dicely | CaringBridge

Lucas Dicely Lucas' Journey

First post: Jan 20, 2018 Latest post: Jan 25, 2018
Lucas was brought into this world on January 16, 2018 at 2:02 PM. He was 7 lbs, 1 oz and 19.5 inches long. We knew that Lucas was going to be sick early on in the pregnancy. We were told he has Hypoplastic Left Heart Syndrome (HLHS). Basically, Lucas did not develop the left side of his heart. In addition, some of the valves in his heart did not form correctly making the diagnosis a little more severe than a "typical" person with HLHS. The medical team was very concerned how he would be at birth and an entire team of people were waiting for him right outside of the delivery room.

Lucas came out without complications from his Mom's end of things. They took him to the resuscitation room immediately and dad was able to watch everything that they did with him. They were concerned because he had a low oxygen saturation and they decided to put a breathing tube in to help him. They put lines in his umbilical cord to give him medications to help his heart as well. After he was stabilized they brought him in to see us for a moment. Than, off he went to the Cardiac ICU where he will remain for most, if not all of his stay. We were able to go see him almost right away and have 24/7 access to him.

Early the next morning his labs were looking ok, and his breathing was better so they took his breathing tube out in exchange for oxygen in his nose. Lucas, taking after his stubborn mother, did not like the oxygen and kept taking it out. The doctors decided to let him try life without the extra oxygen. He showed them that he did not need the oxygen and his saturations have been favorable.

Lucas is still undergoing many tests and is on many medications to help his little heart. We do not currently have a formal plan of care for him yet. He could need anything from multiple surgeries, to a heart transplant. The entire team is working hard to review all of his tests and come up with the best plan for him.

Please stay tuned for pictures and updates about his journey. We appreciate all of the support, prayers and love that have been sent to us and our little Lucas. Keep the prayers coming!

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