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We will do our best to keep everyone up-to-date with Lucas' progress.
April 30, 2012 Lucas had a seizure out of nowhere. The first in over 6 years. He had a hard time recovering from it. May 19th was his birthday - spent a good chunk of it in the neuro unit...but still managed to get a surprise birthday party thrown. :) May 29th he was still having headaches, unstable gait, double vision, trouble sleeping, nausea, and other problems at random. Took him in for an MRI FINALLY (as one was never done previously for numerous reasons) and they immediately found a brain tumor. They admitted him to the hospital right away and scheduled him for surgery.May 30th he went in for surgery first thing in the morning. After 6 hours of surgery they announced they got it all!May 31st they did an MRI that showed they had in fact removed the entire tumor and the brain fluid was circulating as normal. The neurosurgeon announced that there was a good chance that there was a 20% loss of use/sensation in Lucas' left arm/hand and his left eye may stay cross-eyed. Also, that he may be permanently semi-disabled with his walking etc because of how much of the cerebellum she had to remove. Only time will tell.June 7th we finally got the diagnosis back from pathology on the brain tumor - MEDULLOBLASTOMA. A very aggressive type of brain tumor. This means that Lucas will have to undergo a year of treatment. 6 weeks of radiation, and a year of chemo.