Levi Winkler Love for Levi

First post: Nov 13, 2021 Latest post: Jan 21, 2022
Welcome to our CaringBridge website. We are using it to keep family and friends updated  on Levi in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Levi is a fun and sweet 3 and a half year old that loves biking, the Octonauts, and playing. His operation on December 21 at Boston Children's Hospital is called an "Aortic uncrossing" in that the aorta will be cut and repositioned. This will alleviate the pressure on the esophagus, which has made it hard for him to eat a lot of solid foods, and on the pressure on left bronchus going into the lungs. The compression on the bronchus is severe enough that when he gets a cold, he cannot clear the mucus and this has caused secondary infections and can close up when he coughs. While this is very scary and intimidating, the outcomes are positive for those that have had this procedure, albeit only 10 have ever been done. Boston Children's hospital is the leader in this kind of surgery and have the highest technology and expertise to ensure a good outlook. The recovery time is a little unknown but Rachel and Gabe plan on being in Boston from December 15 - January 12 (with Rachel coming directly from Cambridge, England where she is completing here masters degree). 

We will try to put as many updates here as possible to keep everyone informed. Thank you for all you caring and help,

Levi, Rachel, and Gabe

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