Dec 19, 2017 Latest post:
Oct 21, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Logan was born June 16, 2017 at 31.5 weeks due to Jess's placenta previa condition. Logan wowed all of us with his fight within the NICU from the beginning - breathing on his own after about 2 days. Logan was sent for a head ultrasound at 19 days old which revealed Periventricular Leukomalacia. This was not based on any symptoms he was showing at the time, he was basically sent for the U/S based on being born prior to 32 weeks. Periventricular Leukomalacia (or PVL) is a white matter brain injury which causes damage to the white matter area of the brain leaving empty areas which fill with fluid. Based on Logan's diagnosis of PVL, he was setup with Physical Therapy once per week starting in September. Logan's PT has been going pretty well. He has been making progress since Sept.
In November, we noticed that Logan did not seem to see the way that we do. It was hard to explain at first but something just seemed off. We knew based on prior ophthalmology appointments that he could physically 'see', it just seemed as though what he was seeing was not registering with his brain. After some research and discussion, we decided that Logan likely had CVI or Cortical Visual Impairment. We immediately hooked up with a Vision Teacher through Early Intervention and made an appointment with a reputable ophthalmologist. On December 18th. Logan was officially diagnosed with CVI (Cortical Visual Impairment).
What is CVI?
Cortical visual impairment (CVI) is a term used to describe visual impairment that occurs due to brain injury. CVI differs from other types of visual impairment which are due to physical problems with the eyes. CVI is caused by damage to the visual centers of the brain, which interferes with communication between the brain and the eyes. The eyes are able to see, but the brain is not interpreting what is being seen.
We appreciate everyone's support and interest in knowing how Logan is doing. We thought this would be the best way to keep everyone updated. Please feel free to check in here for updates via journal entries. Best, The Bruschini's