Lydia loving the rides!

Lydia Massiah Lydia Massiah

First post: Jul 8, 2008 Latest post: Feb 27, 2017
Our Little Lydia has been diagnosed with a very rare cancerous brain tumor; Choroid Plexus Carcinoma that was particially removed on July 9th, since then Lydia has endured 2 more brain surgeries and 7 rounds of chemo. The MRI shows the entire tumor was removed and her oncology protocol is done! She is receiving much needed support from twin sister Veronica.

On July 8th we took our daughter Lydia to the pediatrician because for the past week she was not appearing well. The pediatrician expected an increase of spinal fluid in Lydia's brain. We went to ER at ACH and within 4 hours we were meeting with the neurosurgereon and his team, Lydia was diagnosed with a brain tumor in her left ventrical. Mom and Lydia spent the night in ICU and the next morning Lydia under went a major surgery to remove the tumor. She lost about 1 and 1/2 times her blood supply but did very well. Within a week we received the grave news that the tumor was a cancer - Choroid Plexus Carcinoma - very rare and very aggresive. Lydia is still recovering from the surgery and now is starting chemotherapy.

Lydia's first round of chemotherapy started at the end of July as soon as she had recovered from surgery. MRI scans meanwhile had shown some possible tumor tissue left behind. A second surgery would be necessary in the near future. Lydia handled this round and the next two rounds of chemo well.

A second surgery had been booked and was performed in late October. Again, she amazed all with her recovery.

Lydia has her 3rd surgery on January 8th 2009; she was the first patient to be operated on in the new IMRI at the Foothills Hospital. This new machine allowed the surgeon to do MRIs during surgery and all clear!! He was able to remove the entire tumor.  She then completed 2 more rounds of chemo and has finished her protocol! Last MRI in March showed everything was CLEAR! we are now waiting to CSF to go down at the surgical site; if it doesn't then she will get a shunt on April 28th.

She is growing and happy! Veronica is more settled now her sister is home on a regular basis.

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