Hi everyone and welcome!
Landon Joseph Wilson was born on Saturday October 10, 2015 at 10:10pm, weighing 3lb 6oz and 16.34in long. He was brought into the world 6 weeks early at 34 weeks due to his growth not being where it should have been. We have had quite the journey to say the least. The pregnancy was full of complications and ups and downs. At one point early on "baby" was not even expected to make it. As time went on and after a lot of praying things resolved and he made it here.
After he was born he was transferred to the NICU where he stayed for 37 days. The experience was challenging but at times rewarding. We had an amazing group of people caring for Landon and even became close with a few nurses. We left what is most precious to us in their hands and we were not disappointed.
Landon was discharged on November 15, 2015 but remained on oxygen and a heart rate monitor. He was visited by at home nurses 2-3 times a week to check his weight and vitals. Although we were happy to be home, it was a struggle. Feedings were not going well and reflux was becoming worse. Changing formulas and medications were not helping him keep anything down. Joe and I knew there was something else going on that was beyond our control. On December 9, 2015 we decided to get him in to see his pediatrician. She advised we have him admitted back to Blank Children's Hospital where they would be able to figure out what was really going on. An hour later we were back where it all started. We stayed on the general pediatric floor for 5 1/2 days where he underwent surgery. On December 14, 2015 he was moved to the PICU or pediatric intensive care unit where he continued to fight.
UPDATE: Landon was finally discharged 18 days later on the evening of December 26, 2015. He remains on 5 different medications and has added nebulizer treatments twice daily. Because it is too dangerous to bottle feed him, he is being fed through an NG tube that travels through his nostril down to his stomach. After his first surgery and allowing things to heal, his feeds have been going a lot better. His reflux continues to improve the stronger he becomes. He has been fighting the reflux and keeping his feeds down in order to gain weight. Landon must undergo 2 more surgeries in the near future for sure that we know of right now. We will also be traveling to different hospitals with Landon, possibly out of state. Currently Landon is home, still on Oxygen, his oximeter and now his feeding pump. He is definitely not out of the woods yet, we have a long road ahead of us and we appreciate all the support we can get!
Our family wants to thank everyone for their prayers and support through Landon's journey. I will continue to update his story as we move forward.
* For those of you looking to support the family financially, CLICK HERE (https://www.gofundme.com/5hfcc2vg