I am a 40 yr old mother to 6 amazing children and I’ve been married for 16 yrs. I struggle with many health conditions and many of them are autoimmune. I was diagnosed with celiac disease at the young age of 2. I also have autoimmune hepatitis and almost had to have a liver transplant in May of 2016. With medication my liver numbers are stable atm. I have an autoimmune blood clotting disorder called antiphospholipid Antibody Syndrome which caused us to lose our 5th child about halfway through my pregnancy. I suffer with asthma, mixed Connective tissue disease, vitamin D deficiency, osteopenia, osteoarthritis, seizures, high bp, tachycardia, gastroparesis and my most recent diagnosis was hypogammaglobulinemia in 2018. I even developed sepsis from this and was hospitalized for 3 months. I currently get IVIG every 4 weeks to lower my risks of infection. Right now I’m using a wheelchair as the sepsis put me in a very weakened state. The gastroparesis is also greatly affecting my life. I just received my 2nd Botox through endoscopy to help relieve symptoms but the dr said I already have scarring from the first treatment. They may not do anymore Botox so either g-poem or gastric pacemaker is the next step. Thank you for following my journey.
