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Jan 4, 2018 Latest post:
Sep 12, 2018
In June 2017 I started feeling out of breath while working (outdoors- lots of walking and lifting). In July I visited my Dr., who thought maybe I developed asthma. By August every breath was a stabbing pain and I was always out of breath. Back to Dr., diagnosis of muscle/rib pain from asthma. Later in August the pain was so severe I went to the ER. Diagnosis- some kind of infection. It was discovered that half my right lung was collapsed and right side diaphragm wasn't moving--lots of antibiotics and pain meds and I checked out. Went to a Tigers game the next weekend, and I really struggled with pain and breathing. Back to the ER, where it was finally discovered that I had multiple Pulmonary Emboli in both lungs, and my right lung was half gone. Spent 5 days on blood thinners in the hospital, and returned home with a whole new "normal". Always out of breath. Sorta felt like I lost myself--no more singing, anything other than sitting made me feel exhausted and out of breath. Naps became my new best friend. By December (when the clots should have all been gone) it was clear that some emboli has become scar tissue. The doctors in Michigan have declared me a "bit of a puzzle”. I now have chronic clots in my right lung, but I don’t have hypertension (which is good- many people develop high pressures in their heart and lungs when they have scarring such as mine). I refuse to just sit and wait for hypertension to develop, so I am currently working with Cleveland Clinic to hopefully figure out a way to heal.