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Lindsey Moon Lyme Light
Nov 10, 2016 Latest post:
May 15, 2020
Thank you for visiting my page! I have late-stage Neurological Lyme Disease and Gastroparesis, among many other medical complications.
This is my story: I was loving being newly married, I lived an active lifestyle and greatly enjoyed my career working with shelter animals. Life drastically changed on October 4, 2010, when I woke up in extreme pain and I could hardly get out of bed. My symptoms increased and my overall health rapidly declined. Within a month I was in a wheelchair and this began countless visits with doctors from multiple specialties and painful testing. My symptoms were mimicking Lupus, Multiple Sclerosis, Fibromyalgia, Chronic Fatigue Syndrome, and ALS (Lou Gehrig's Disease). I was diagnosed with advanced Neurological Lyme Disease on January 31, 2011, and began an aggressive treatment. My doctor believes that I contracted the bacteria and two co-infections from a tick bite when I was around the age of 12 and my numerous symptoms were continually misdiagnosed. I was on IV antibiotics for 1 1/2 years and have had many long hospitalizations from frequent seizures that are very difficult to manage. The infection spread to every organ in my body and primarily damaged portions of my brain. I went through times when I couldn't move my toes, I was unable to recognize my husband, I couldn't feed myself, I couldn't communicate my thoughts and I had seizures lasting up to three hours.
The road to recovery has been long, but God has made a painful trial into a wonderful blessing. My relationship with God is more gratifying than I ever imagined and my illness has bonded me closer with my husband. I've also been touched by the continual outpouring of prayers and support from family, friends, my church, and even strangers. It is highly likely that I will suffer from this disease until I go home to be with the Lord. I still have bad days, but God has provided more healing than any of my doctors thought possible. My family and I have witnessed incredible miracles. During my first major hospitalization, I was seizing uncontrollably around 17 times a day with no end in sight. I grew weaker and my body struggled to get enough oxygen. My husband was told by the doctors to prepare to say goodbye because they were unable to stop the seizures and they didn't think my body could endure the damage much longer. My husband, family, and friends pleaded with God to stop the seizures and provide healing. With minimal medical intervention, the seizures began to drop rapidly until I finally had a day with just one seizure and I finally returned home. My doctor referred me to one of the top Lyme Disease specialists in the world. Upon my first appointment with my new specialist, he claimed that after seeing about 10,000 patients that I had one of the most severe cases he had seen and he told me that he was amazed I survived.
God performed another miracle in August 2012 when I suddenly regained the ability to walk short distances. He has provided everything my husband and I have needed to endure. He has provided comfort through studying His Word on my own or with Peter and my Bible Study group. God also provided amazing doctors, adaptive equipment, 24-hour caregivers, donations to help pay for treatment, and a wonderful service dog, Ben. My husband, Peter has selflessly cared for me every step of the way and our love for one another seems to grow deeper each day. Peter relies on God for strength and by God's grace, he has been able to care for my most basic to extensive needs. I pray that God is using our trial to give hope to others who are struggling that anyone can have true lasting joy if they put their faith in Jesus Christ!
If you or someone you know is suffering from Lyme Disease or Gastroparesis, please feel free to contact me and I will try to support you through encouragement, suggestions for treatment, and prayer.
*Please Note: We are not in need of financial assistance, as God is providing. Any donations or tributes in my name are given 100% to the Caring Bridge website. Previously some have donated thinking it was going to us and we want to make sure you knew how this site works. Your prayers are our biggest need!*