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Feb 18, 2018 Latest post:
Jun 25, 2018
Hello, family and friends: I have debated about starting a site such as this and have decided that it is a good way to keep everybody updated in a timely and clear manner. Getting to a diagnosis has been quite the process, and the path has been full of lots of large scary words and new concepts. The official diagnosis is AL Amyloidosis. This is a rare condition with very concerning prognoses. Let me say that I feel very fortunate to have been diagnosed early on in the disease process, and my particular presentation of the disease is localized instead of throughout my body. So, there is some good news. Unfortunately, the treatment for this disease involves lots of chemotherapy and a stem cell transplant as a grand finale. In the fortunate category is my treatment team. I am working with an oncologist at the Polyclinic in whom I have compete confidence. My stem cell transplant doctor is internationally known, so when the time comes, I will be in excellent hands. My treatment is once a week on Fridays in Seattle for four months. I hope to be home in Marblemount between treatments. After that time, I will need to be in Seattle for the pre-transplant chemo and the transplant. I feel so blessed to have all of you in my life. Your words of support and love have sustained me and will continue to do so. My care partner will be Mary Kay, and I know that she really appreciates you all as well. She will be posting on here to help me keep you updated. When all is said and done, it is the love in our lives that makes everything worthwhile. You are all part of my community, and I love you dearly and welcome your presence on this journey. Life is full of journeys. This is my next one. Should be an interesting ride. And just so you know, I plan on not losing my sense of humor, so feel free to to join in.