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Feb 6, 2016 Latest post:
Dec 17, 2016
Welcome to our family's CaringBridge site for our mom, Linda. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.
Mom's Story As some of you know, our mom, Linda, has had breathing problems for quite some time and doctors have not been able to find a clear cause. She had respiratory testing and several X-rays of her lungs that came out normal, but was given a diagnosis of bronchitis, asthma, and sleep apnea.
After struggling with pneumonia in January and seeing her cardiologist with concerns of her breathing, we were referred to a pulmonologist. On Friday, January 29th, we saw a pulmonologist at the MN Lung Center in Edina. The doctor indicated that mom’s symptoms and test results were not common for asthma, so she ordered a CT scan and discovered a growth in a bronchial tube in her left lung. They believe this is the source of her breathing problems and may even be the cause of her A-fib/A-flutter.
She had a bronchial scope with biopsy on Monday, February 1st at the Abbott Northwestern Hospital.
On February 3rd, the bronchial surgeon called as a follow-up to mom's biopsy and unfortunately we did not receive good news. She has an extremely rare form of blood cell cancer. As of now, we do not know if it is contained in her lungs or throughout her body.
On February 4th, we had an appointment with an Oncologist at Minnesota Oncology Hematology, PA in Burnsville. He ordered several tests for her starting with blood work that day.
She had a PET/CT scan of her entire body in Edina on February 8th, echocardiogram on February 9th at the Minneapolis Heart Institute and a bone marrow biopsy reschedule at Mayo for Monday, February 15th. The intention of these tests is to determine the type and level/stage of cancer she has, which is currently not known.
We have been told it could be any of the following blood cell cancers. The biopsy indicated that she has a plasma cell neoplasm (kappa light chain restricted) with extensive amyloid deposition. The three cancers they are testing for include:
1. Primary pulmonary amyloidoma with plasmacytoma
2. Multiple myeloma
3. B-cell lymphoma
As many of you have said over the past few days, our mom is an amazingly strong person. She is a very kind, giving woman with a great spirit and faith. We are all taking this day-by-day and appreciate everyone’s love and support.