Welcome my CaringBridge website. We are using this site to keep everyone updated.
I was diagnosed with ALS (amyotrophic lateral sclerosis)/Lou Gehrig's disease in January of 2016. I have retained some leg strength so I can stand weakly with maximum assistance, but no longer have use of my hands or arms. After several months of growing dependence on a mask ventilator, I received a tracheostomy May 2018. In the coming months I hope the procedure will help to increase my energy level. I will be working with a speech therapist to work toward regaining my voice and return to a normal diet.
Sid, Scott, Christopher, Virginia, and Leigh will use this site to share updates, and help to coordinate the acts of generosity and love that have been offered. Thank you for visiting, and for all the support you are providing.
For more about ALS, please see http://www.alsa.org/about-als/