Lilly Winn

First post: Aug 26, 2020 Latest post: Aug 30, 2020
Hello! When Lilly was just a little bean at her 20-week anatomy scan, we discovered that she had a CPAM or congenital pulmonary airway malformation. This is basically a catch-all term for airway malformations. Lilly has a mass of fluid-filled cysts in her left lung. This can cause trouble breathing at birth, cause shifting of the heart (causing many problems), and long term illness and potentially cancer. Lilly initially had her heart shift, but in utero, she decided to sort that out herself! She's been amazing since before she even made her arrival. She was born screaming and happy with no concerns about her breathing. That being said, the typical way to handle a CPAM is to remove it to prevent all of those long term problems.

So, that is what we are doing! She will have surgery to remove it and should heal beautifully. We are unsure if when they get "in there" where exactly the mass will be (you can only tell so much from a CT scan). We are hoping it is not IN the lung, but sitting right on it. If it is in the lung, she will need a portion of the lung removed. If it is not, it is likely they can just remove it. We are expecting the surgery to last anywhere from 4-8 hours with a 1-2 night stay in the pediatric ICU.

We are currently asking for as many prayers as we can get! Thank you!