Lilia Warner

Welcome to my caring bridge, for those of you who are just joining me on this journey I'll tell you how it seemed to start. Going into 2018 I was very hopeful that it would be a great year for me to get back into my tumbling, back to school and hanging out with friends. 2017 had been a tough year breaking my tibia which led me to be in a full leg cast over the summer (so much for summer vacation!) and missing a couple months of school in the fall due to a severe sinus infection, I did have a successful eye operation in December and can now see without double vision! First couple of weeks of 2018 seemed to be going okay and I was ready to go back to school after the snowstorm (yes we had one in Texas)  then my stomach started hurting constantly and I started to have nausea throughout all my days, then I started throwing up everything that I ate and couldn't keep anything down.  My Primary Care Physician was worried  it could be an early appendicitis until we ended up in the ER on January 25th and the ultrasound said my appendix looked normal. My Primary Doctor then referred  us to the first GI doctor and he thought I was constipated or it was in my head. He even said I was making myself throw up to look for attention. The pain was so bad once again that I ended up in the ER on February 8th and was admitted to the hospital for pain management. They had me on morphine for pain and Zofran for nausea. They kept telling me I needed to eat, but I threw everything up and went down to about 95 pounds. Then my GI doctor figured out it was more than me just looking for attention, so over the weekend of February 17th  I had an endoscopy, colonoscopy and upper GI series. All my tests came back normal except for microscopic inflammation in my stomach.  My GI doctor wanted me to see a neurologist but couldn’t get one in the hospital, but he put in a PICC (peripherally  inserted central catheter) for feeding (but did not start the feeding) and  transferred me by ambulance to Texas Children’s Downtown. At Texas Children's the hospitalists or general doctors tried to figure out what to do for me. I still wasn't being fed and so I continued to loose weight. Without nutrition and in constant pain/nausea I was too weak to do much of anything except lay around and sleep, most of the time I wanted to sleep in the dark. I finally had a gastric emptying study on Monday, February  19th. 

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