Our June campaign is almost done, and an anonymous supporter of CaringBridge will honor supporters like you by doubling all donations, up to $10,000. Make a donation to CaringBridge by June 20 to be counted.
My Nephew was born on May 17 of 2016 and was diagnosed on Feb. 23rd of 2017 with Hurler Syndrome. Then his journey began as he battles Hurler. Right now he is waiting for a bone mirror transplant, once he finds a donor we can begin on the process of that. The journey has already been a big roller coaster for our family, we had never heard of Hurler before and reading up on it made us very sad, just hearing what can happen if not treated and seeing the personal stories can be sad and some very hopeful.