Lilah Robinson

Welcome to our CaringBridge website. We are using it to keep family and friends updated on Lilah’s condition. 


Lilah was diagnosed prenatally with a congenital heart condition called Tetralogy of Fallot with Absent Pulmonary Valve Syndrome. Babies with ToF require open heart surgery typically within 4-6 months of life. However, since Lilah has the added Absent Pulmonary Valve diagnosis, she will most likely have added complications with her breathing and may require surgery much sooner.