Liam Charles-Rivera

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place about Liam's health and road to recovery. We appreciate your support and words of hope and encouragement. Thank you for visiting. Some of you may or may not know of how Liam came into our family and how we ended up being in the position we are today. So here's a great place to share about our little blessing and the text message that changed our lives for the better and forever.

A representative from Friends In Adoption, the same adoption agency that blessed us with our daughter Maya 5 years earlier, sent a text to Jim asking if we still knew friends in NYC. We thought it was just another person trying to see if we'd facilitate tickets to see the Broadway smash hit, HAMILTON.  Since we worked in theatre for years and have a lot of contacts in the Broadway community and from time to time link friends with shows we thought it was just that... someone seeking tickets to a show. Well it so happened that she did not want tickets to a show but wanted to see if we were to spend a lot of time in NYC would we have friend/family to stay with because she found a child that would fit perfectly into our family but it would demand some time spent in NYC.

Why the fit? Well our agency has coined us the Heart Guys because Maya had a heart defect when she was born and needed surgery and possibly extra care for her heart malfunction. A lot of families passed on Maya, and also Liam, because of their particular irregularities. Nope, not us. We did our research, spoke to physician friends, and weighed our options and said yes. (Full discloser: Liam's adoption is an open one, whereas Maya's was not so we actually had to "audition" to be his parents and meet his biological mother. But that's for another journal entry.) 

When Liam was born he was diagnosed having a congenital heart defect, Pulmonary Artesia with Intact Ventricular Septum and severe damage to his coronary arteries. Therefore Liam needed a heart transplant within his first 3 months of life or he would not survive. Fortunately at 2 months old a donor was found and he had his heart transplant at New York-Presbyterian / Morgan Stanley Children's Hospital in New York City.  When we met Liam for the first time he was one month post transplant and was thriving. We knew that we weren't 

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Liam’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register