Lewis Caster

First post: Apr 3, 2022 Latest post: Feb 7, 2024
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. If you would like to donate to Lewis’s Go Fund Me you may go to the top of this site and click on Ways to Help. Thank you for visiting and for all the love and support!

September 2021 - Lewis slipped and fell backward in the bathtub and landed on his back on the tub's ledge. From the fall he started coughing

Christmas 2021 - Lewis went to the hospital. He was very ill and was diagnosed with Covid. A Thoracic surgeon met with him. Some X-rays and scans were performed. The scans showed a fluid sac which was believed to be from a fall back in September. 

March 2022 - more scans were performed. Doctors saw that the fluid had dissipated, but nodules were found on his lungs. A biopsy was performed. They wanted another biopsy performed, which was done in April. Those samples were sent to Johns Hopkins. After that second biopsy, we learned the samples were lost (this had been two weeks). We contacted Johns Hopkins in Maryland after none of the doctors in Florida (who had been providing care for Lewis) offered help to locate them. Luckily Johns Hopkins responded with information and a FedEx tracking number. In the meantime, Lewis was scrambling to make appointments with Sarcoma specialists. He saw a dr at Mayo in Jacksonville. They were ready to treat him, but Mayo is out of network, and tests would cost $100,000.00. He then went to Baptist MD Anderson Cancer Center, but they told him he needed to go to Sylvester Cancer Center in Miami. 

Lewis FINALLY had an appointment at Sylvester Cancer Center. They are in-network and on the ball. We are excited he has found a place to receive the care he needs. HOWEVER, he needs to redo all of the scans, tests and biopsies because everything else is too old. 

We are under the impression he has Intimal Sarcoma from what he was told at Mayo. This is a very rare and aggressive cancer. We are waiting for an official diagnosis from Sylvester Cancer Center. 

We are raising money to help support Lewis with his medical bills and his cost of living. His work does not provide insurance, so he pays out of pocket for his monthly premium.