Levi Merritt | CaringBridge

Levi Merritt

First post: May 16, 2018 Latest post: Sep 7, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.


The morning it all started I stopped at Dad's house to see the kids before I went to work.  It was dad's weekend and I was going through mommy withdrawal.  Dad said Levi had a slight fever but otherwise felt ok.  We had been battling sickness all winter at our house so didn't think much of it other than - here we go again.  I made it through an entire day at work- I was relieved.  Maybe "sick season" is over and we will finally get a break from doctor's offices and antibiotics.  I got to daycare to pick up Levi.  As many of you know, I work as an oncology RN, and the moment I laid eyes on Levi my nursing radar went off.  He looked pale and felt very warm.  I remember thinking to myself- here we go again, is it the stomach flu- we just couldn't seem to catch a break.


Immediately after getting home, I put Levi into my bed and took his temperature.  It confirmed what I suspected- high fever.  I began asking him questions like does it hurt anywhere?  He would tell me his leg, arm, and head hurt.  He said he was tired.  I started putting on his pajamas and was contemplating if I should take him to Urgent Care or wait until tomorrow to bring him in.  I knew something wasn't right.  As I took off his P.J.'s I began noticing bruises all over his shins on his legs.  I didn't think too much of it because what 4 year old boy doesn't have them.  But, then I saw a huge bruise on his foot.  The bruise was about the size of baseball- what was that about? Having worked  in hematology, I started thinking the worst- many of you who know me know I can worry and I found myself quickly going down that road.   I stopped myself from going down that road-  there is no way my son has anything serious going on. I told myself to stay calm and keep your cool.  So I continued investigating.  Looking closely,  I noticed he had small petechiae under his eyes, on his chest, upper thighs, and neck.  Petechiae and bruising-I was getting more concerned.  I knew then I needed to take him in and find out #1 if his foot was broken and #2 if his labs were okay.  


Fast forward to Urgent Care.   I remember telling them everything and showing them everything that I had seen.  We agreed to check a complete blood count. Getting more nervous- they had to take blood from his arm.  He was scared, I was scared.  Blood draw successful, now we had to wait.  I knew when the door opened and the PA came in with a copy of the lab work it was not good.  She proceeded to show me his labs, I took one look and my heart broke. My hematology background was a blessing and a curse.  At that moment I knew it was bad, they told me we would need to be admitted to the hospital that night to do further testing.  With that Levi and I started our journey together.  That night we found out he had leukemia.  I was alone with him when I found out and wanted to scream, cry, hide, our lives would forever be changed.   There is a song by Ben Rector, When a Heart Breaks- listen to it if you haven't - life can change in an instant- each day you have is a blessing - treasure it!  


It has been a whirlwind since Levi was diagnosed on April 9th 2018 .  I have been so grateful for all the love, support and kindness of everyone- I will do my best to post updates at least once/week .  Levi is my hero  and would like to share and let you all be a part of our amazing journey!  Until next time- Levi Strong-  We got this !!! Together we can move mountains!!!!!

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Levi’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register
SVG_Icons_Back_To_Top
Top