Levi Demerly

First post: May 4, 2022 Latest post: Jan 10, 2023
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support, prayers, and words of hope and encouragement. Thank you for visiting.

On April 28, 2022, Levi started having facial twitches, which we later discovered were focal seizures in his face. Over the next few days, he had a few more, which led us to the hospital, and eventual evaluation. After an MRI on Monday, May 2, we discovered that Levi has what’s called an AVM, or ArterioVenous Malformation. This is where the veins and arteries in his brain connect, which shouldn’t happen. As such, Levi is at risk for a Brain Aneurysm if his AVM isn’t removed. With that being said, it is likely we will be having some form of brain surgery within the next month to remove the AVM. Your prayers and thoughts are appreciated in this difficult time for us. We are confident God is in control, but this is a scary situation for sure.