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10/1/2016 Latest post:
Welcome to our CaringBridge website. We (Leslie's children, with permission from Ron, Leslie's husband) are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Our Mom started having some memory gaps a couple of years ago, but about 12 months ago, the intensity of the gaps really became very noticeable and Mom's behavior started to change drastically. Mom and Dad have been working with both her primary care physician and a Neurologist, and just recently, the diagnosis from the Neurologist was confirmed to be moderate to severe dementia - Alzheimers.
In the state in which the disease is now, Mom can barely if at all acknowledge that she has it, even on her best day. We love her and are working to keep her safe and as happy as we can each day - which is incredibly difficult when she cannot even acknowledge that something is afoot. For any of you who have been through this disease - you know that it is incredibly difficult to watch someone you know go through this. Leslie was a wonderful RN (she retired many years ago) - she opened one of the first Ambulatory Surgery Centers in the nation, she spoke at the Association of Operating Room Nurses to share the cutting edge work she was doing at the time. One smart cookie. That beautiful brain of hers just isn't serving her in that way anymore, and decline is difficult to witness.
In saying all this, we don't want you, the readers of this blog, to think that Mom is only her illness - she's still our Mom and we love her very much. Her spirit is present most times, her sense of humor and laugh are infectious when she's having good days (she still enjoys a good joke, and even makes some at her own expense), and she's doing what she can each day to be in whatever time frame she's in. Our objective is to give her as many moments of joy as we can each day.
She would want you to know what's happening (she has always been about information), for us all to learn from it, and to remember that she has the disease, the disease does not have her.