Lee DeYoung

First post: Sep 19, 2022 Latest post: Apr 5, 2024
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

 Lee was diagnosed with Stage IV Diffuse B Cell Lymphoma on September 23 after being hospitalized in the ICU for 10 days.  We will chronicle his journey on this site.

Over the past summer, Lee began having issues of fatigue and weakness, with cyclical fever and chills developing in August and September.  The work up for these concerns led to the discovery of a mass just below his kidney as well as concerns for lymphoma (found on a peripheral blood smear).   The hope was to be able to biopsy the mass via an outpatient procedure on September 9, but unfortunately, the mass proved too difficult to access.  Over the subsequent days at home, Lee continued to develop more substantial fevers and was brought to the emergency department at Spectrum Health Butterworth Hospital on September 13.  The healthcare team quickly determined that he need an ICU bed as his blood pressure was dangerously low.  Lee was then transferred to Spectrum Health Blodgett Hospital to get him more quickly admitted.   He was placed on an IV blood pressure medicine and had a nephrostomy tube inserted to allow his right kidney to properly drain, as it was almost completely blocked by the mass.  Unfortunately, Lee's fevers and need for IV blood pressure medicine continued for a number of days and the cause of this instability was linked to hemophagocytic lymphohistiocytosis (HLH).  This is a rare often deadly complication  connected to his Lymphoma which was diagnosed on 9/23 after biopsies of his marrow and abdominal mass on 9/21.
This site will be managed by Peter and Karissa (oldest and youngest kids). We will try to keep you all posted as things unfold.  

We appreciate all your thoughts and prayers.

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