Some of you know I have Stage 1 Breast Cancer, but the majority of you don't. I will go through the story below, but I have an urgent need/request of each of you before Monday 4/5.
I have a test result coming this Monday 4/5 and I desire to receive the power of all your support by asking you, in whatever way fits for each of you, to hold the idea in your mind that I will get a low test score on Monday, lower than 20 and preferably even lower than that (a 10 would be incredible!). A lower test score means that chemotherapy is not likely to be recommended for me. A higher test score means chemo will be something on the table for serious consideration.
The background: in December, I went in for a routine mammogram, despite Covid, and I needed a follow-up. This has happened to me before so I wasn't concerned, but in the follow-up visit I was told I needed to have a biopsy and there was a small chance I had breast cancer. The biopsy found that I had DCIS, which is considered Stage 0 breast cancer (not yet cancer) and a great prognosis. I was told I'd have to do surgery to remove the DCIS (lumpectomy), radiation and hormone treatment but all very manageable and there was a small chance they'd find invasive breast cancer after the surgery. In February, I had the lumpectomy where they successfully removed the DCIS cells. The pathology report of my entire sample revealed a small amount of it (.4 cm) was invasive cancer. I then had to go through another general anesthesia surgery to have a few lymph nodes removed in early March and tested for whether cancer had gotten into my lymph system. Thankfully, it did not, so I have the result of Stage 1 Breast Cancer.
My breast cancer cells have some aggressive qualities to them, so we ran another test (Oncotype) which is what I'm waiting for the results of on Monday 4/5. This is a genetic test of the cancer cells to evaluate the likelihood that they travelled somewhere else in my body, through my blood stream, and might cause a recurrence of breast cancer somewhere else. Hence, why chemotherapy is a possible treatment course for me.
I feel scared about what's next, and trust I'm going to make a good decision about my treatment. I need and desire all of your support as I navigate this big inflection point in my care. I thank all of you for however you can hold me in your mind and see me receiving that low score, and for your support and care whatever ends up being next for me.
I chose to use this site, with the help of the dear Becky Rodskog, because I want to be in contact and receive all your love and care and words of hope and encouragement, and I feel overwhelmed by the amount of communication I am opening myself up to by sharing this information. If we use this site to communicate, it allows me to keep you all updated in one place, at the same time, which feels more manageable and supportive of me on this journey. Thank you for visiting the site and using it to be in touch about me and my breast cancer - I welcome hearing from you!!!!