In the Fall of 2017, we began to notice slight changes in Larry’s personality... what started out so minuscule and difficult to pinpoint began to transform into more concerning patterns.
Larry suddenly appeared to shut down from the World... he lost interest in everything including his family, work, hobbies, and spiritual life. For anyone who knows Larry... this was absolutely out of his character. As his wife... I struggled to uncover what exactly was happening... this would continue on for months. The most baffling and scariest part was he didn’t seem to be bothered by the changes or even notice them occurring.
As the months progressed, not only did his personality appear impacted but also his cognition. Larry began to have difficulty with following directions, he could no longer initiate tasks, he became easily overwhelmed, began having panic reactions that were unexplainable, had overarching worry, could no longer connect emotionally with family and friends, and could no longer express basic thought processes.
Following a trip to Israel in May of 2018, we began to aggressively seek out answers as to what was causing these increasingly concerning symptoms.
After 5 FRUSTRATING and TIRING months of doctors visits, counseling sessions, specialists visits, lab tests, brain scans, medication trials, more doctors visits... we finally found an answer at Mayo Clinic in Rochester on October 24th, 2018.
As Larry quietly sat and mostly observed (which had become normal for him at this point)... Myself and my mother- in -law Jenny described to the Neurologist the events that had unfolded over the past year. Oddly... the Neurologist confirmed every one of our concerns and validated every single symptom. He knew exactly the diagnosis.
The Neurologist looked at us and said the words... Frontotemporal Dementia. That was the moment the World came crashing down... we had an answer but it came with such a heaviness and finality. No cure... No treatment... No hope of ever going back to the Larry we so loved and cherished.
Despite this we continue to fight for Larry... as he loses more and more of his voice we feel it is our duty as his loved ones to be his voice. To share his story and honor who he was and is. We will continue to advocate for him, seek out the best treatments, and to care for him to the absolute best of our abilities.
As difficult and uncertain the journey is that we face we have made a decision as a family to focus on the NOW as best as we can. To embrace every opportunity to be together, enjoy our time together, and to love one another. Not to mourn the past or the “what if’s” of this life. And to not worry about the future... God has us in the palm of his hand. He is ever present.
Tomorrow is not promised... so we will live today to the fullest.
Hebrews 12:1 Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles us. And let us run with PERSEVERANCE the race marked out for us.
*We’ve shared some informative links about FTD along with a Go Fund Me our dear friends initiated on our behalf under “Ways to Help.”
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*Thank you so much for joining us on our journey through CaringBridge. We are using it to keep family and friends updated in one place. We truly appreciate your prayers, support, and words of hope, love, and encouragement. We are grateful you are here*