Me & Lori when it all began with the chemo. My hair is a lttle more full now. Key word being little!

Kim Petty

First post: Mar 4, 2008 Latest post: Jan 23, 2017
An overview as of November 2015

We began this journey on February 29, 2008, with a plan to remove a 20 lb tumor. After a reappearance by Toomis in 2009 and 2010, we knew the initial "we think we got it all" diagnosis wasn't what we had.

Liposarcomas are extremely rare. Many medical professionals never see one. For a liposarcoma to change from well differentiated (basically, encapsulated) to dedifferentiated is even more rare.

Kim's 4th surgery was in 2011. In 2012, 2 of the 3 tumors dedifferentiated. That's when the treatment plan changed to chemo. After 1 drug trial and 2 different regular chemos, we found one that gave us 18 full months of stable.

In November 2014 the chemo was no longer being effective. After 2 more trial drugs, we've come to this point, November 2015, back to another surgery.

Given the fact that medically, Kim wasn't expected to be with us for the last almost 2 years, we believe that every victory in this has been to get us to the next thing.

Our people, the Kim Petty Nation, are the reason we are able to continue. We are grateful for each of you, and we love you all.

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Kim’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register