Oct 19, 2019 Latest post:
Mar 31, 2020
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. Start here if you want to understand why we're using this site. Note - if you have no clue what's been going on with me lately at all, you may want to simply start with the journals, and begin with the oldest one, and work your way forward chronologically!
One of my dear friends has made use of Caring Bridge for well over a decade to chronicle her journey through multiple lung transplants. Although in many ways I feel like - or at least hope - that my medical drama will be nowhere near as complicated or full of ups and downs as hers has been, I have been really impressed at how helpful this site has been for keeping everyone updated on what is going on with her situation. As I contemplated starting a blog to keep my circle of loved ones informed of my journey, it just made sense to use Caring Bridge. I hope to use this site to have one place to update everyone on my stroke recovery progress and diagnosis journey (since that's no small element to this whole thing - why did I have a stroke at such a tender young age?!), as I've seen that doing so in a central place is way easier than trying to answer individual emails and phone calls.
I'm going to start with some posts that detail exactly what happened in what I've been referring to as "the circus." Calling this "the circus" was not my idea - I wish I could remember who suggested it, but it came up soon after I landed in the hospital, and my memories of those days are still pretty muddled. I had some amazing and hilarious nurses at Saint Vincent's and would not be surprised if it was one of them. Their good humor was so appreciated.
This may be more detail than some of you really want or need, but I enjoy telling stories so I hope it's at least somewhat entertaining. It may take me several posts to get caught up to the current day, but I think it will be therapeutic, and you are always welcome to skim if it's more than you care to know. Some of this may end up cut and pasted from some Word documents that I've been using to try to recreate the trail of events. One friend laughed that it sounded like I was involved in a murder mystery, and frankly some days it feels like that. I'm posting things in chronological order, and having a friend help me try to find a way to help you find a way to navigate your way through them if you don't find your way here early in the process.