July 9 2018

Kim Barkov Kim Barkov's BMT Survival

First post: Sep 27, 2018 Latest post: Jul 3, 2020
In 2013, I was diagnosed with a bone marrow disorder, a benign form of Leukemia called "Polycythemia (PV)" along with c Early Stages of Pre-Fibrotic Myelofibrosis MF.  I remained stable for ~3 years.

During 2016 things dramatically changed! Key blood counts declined and symptoms increased in both frequency and intensity.  In 2017, when I visited MD Anderson in Houston, my pathology report stated I officially transformed to MF, when the AXL1 and Trisomy 8 mutations were found.  Within one year I was given the MF-3/High Risk prognosis that included a shortened life expectancy (< 2 years), if I did nothing.  

Since the only cure for MF is an Allogenic Stem Cell/Bone Marrow Transplant, I began this process in May 2019 at the Seattle Cancer Care Alliance (SCCA)/Fred Hutchinson. Mayo Phoenix was fired after they prematurely discontinued a medication (Jakafi) that triggered a very scary life-threatening cytokine attack that placed my transplant on hold.

May 10th, 2019 is considered Day-0, when my perfectly matched donor stem cells  were infused through my port into my body.  My transplant experience was  uneventful.   Most important - I made it and celebrated my one-year re-birthday! Life marches on with huge thanks to Ethan, my donor, who saved my life. An extraordinary young man.

I am now officially two years post transplant and beginning my third year.  As each new year passes, this date will remain more important than turning "60" on June 30th.....

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Kim’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register