In 2013, I was diagnosed with a bone marrow disorder, a benign form of Leukemia called "Polycythemia (PV)". I remained stable for 4 years.
In 2017 I learned I was transforming to Myelofibrosis "MF", when the AXL1 mutation was found in addition to JAK2. Within one year I was given the MF prognosis that included a shortened life expectancy (< 2 years). Since the only cure for MF is a Stem Cell/Bone Marrow Transplant, I began this process in May 2019 at the Seattle Cancer Care Alliance (SCCA)/Fred Hutchinson. (Mayo Phoenix was fired)
May 10th, 2019 is considered Day-0, when my perfectly matched donor stem cells were infused through my port into my body. My transplant experience was uneventful. Most important - I made it and celebrated my one-year re-birthday! Life marches on with huge thanks to Ethan, my donor, who saved my life. An extraordinary young man.