July 9 2018

Kim Barkov Kim Barkov's BMT Survival

First post: Sep 27, 2018 Latest post: Jul 3, 2020
In 2013, I was diagnosed with a bone marrow disorder, a benign form of Leukemia called "Polycythemia (PV)".  I remained stable for 4 years.

In 2017 I learned I was transforming to Myelofibrosis "MF", when the AXL1 mutation was found in addition to JAK2.  Within one year I was given the MF prognosis that included a shortened life expectancy (< 2 years).  Since the only cure for MF is a Stem Cell/Bone Marrow Transplant, I began this process in May 2019 at the Seattle Cancer Care Alliance (SCCA)/Fred Hutchinson. (Mayo Phoenix was fired)

May 10th, 2019 is considered Day-0, when my perfectly matched donor stem cells  were infused through my port into my body.  My transplant experience was  uneventful.   Most important - I made it and celebrated my one-year re-birthday! Life marches on with huge thanks to Ethan, my donor, who saved my life. An extraordinary young man.

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