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Jan 24, 2017 Latest post:
Apr 8, 2017
Kiery Rae Wallace was born on August 26, 2016 at only 33 weeks. She weighed 3 pounds, 13 ounces and was 16.5 inches. I went in for a routine check-up and my doctor sent me straight to the hospital where I was quickly diagnosed with severe preclampsia and HELLP syndrome. This was completely unexpected since I had 2 full term babies. It was toxic for both she and I and in order for both of us to survive, I was sedated and she was born via c-section at 6:15pm. Kiery spent the first 8 days fighting for her life with the help of a ventilator in the NICU. Not being able to hold or comfort our new baby was torture. She was finally healthy enough to have the vent removed and placed on oxygen and was able to move to the grower and feeder side of the NICU! At 17 days old, the NICU doctor told us he thought she had Crainosynostosis and would need corrective surgery on her head. I was numb and cried for many days. But as a mom you have to put one foot in front of the other and keep going. I had 3 kids that needed me now. So after many more tears, my amazing friend met us at the hospital to take notes to make sure we didn't miss anything. Kiery continued to grow and get stronger everyday. After 24 of the longest days of our lives, we finally got to bring Kiery home from the NICU on September 18! She was 4 pounds, 5 ounces and still on oxygen to help her lungs. It was the best day of our lives as a new family of 5! Now it was time for the next chapter in Kiery's Journey. We decided to go with the Amazing doctors at Children's Hospital for her Sagittal Crainosynostosis surgery. Once again, listening to the doctors explain the surgery and the procedures we needed to take, I was terrified. We have a 4 pound baby that fits in my hand and is going to be sedated and have a strip of her skull removed in order to make her head round. I had never even heard of Sagittal Crainosynostosis, let alone know how to pronounce it! Well, it is when the plates in the babies skull fuse together in the womb making the head look like a football. I did a little more research, as in I only read childrens hospital website. I was told NOT to use Google for this, great advice Ryan!!
Kiery's CVR Sagittal surgery will be on February 2, 2017. She will be a little over 5 months actual age, 3 1/2 months adjusted. Surgery is to last 3-6 hours start to finish and we will be in the hospital 3 days. Our now 11 pound peanut is smiling, laughing, rolling over and loves her Daddy, big brother Brody and big sister Whitney almost as much as her mommy! She has come so far, but still has one more major hurdle to jump. With Gods plan for her and all of the love and support from our family and friends, she is one lucky girl!