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In February 2018, after weeks of breathlessness and weakness, Kevin was diagnosed with secondary Pulmonary Alveoli Proteinosis (PAP), a rare lung disease that affects 6 in every 1 million people. Since the diagnosis, Kevin has undergone two whole lung lavages, a process by which the lungs are washed out with saline in order to clear build-up of surfactant that collects on the alveoli, blocking oxygen from being distributed throughout the body. The lavages brought little relief and Kevin is on oxygen 24/7, unable to work and weakened by limits to his mobility.
In early April, Kevin began the first in a 24-week therapy using inhaled GM-CSF (Leukine) to help treat the PAP. This is an experimental treatment that provides relief in some patients. So far, after 5 weeks of inhaled GM-CSF, Kevin’s response to the treatment has been negligible and his health continues to decline.