Kevin McGill | CaringBridge

Kevin McGill

First post: May 17, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

In February 2018, after weeks of breathlessness and weakness, Kevin was diagnosed with secondary Pulmonary Alveoli Proteinosis (PAP), a rare lung disease that affects 6 in every 1 million people.  Since the diagnosis, Kevin has undergone two whole lung lavages, a process by which the lungs are washed out with saline in order to clear build-up of surfactant that collects on the alveoli, blocking oxygen from being distributed throughout the body.  The lavages brought little relief and Kevin is on oxygen 24/7, unable to work and weakened by limits to his mobility.

In early April, Kevin began the first in a 24-week therapy using inhaled GM-CSF (Leukine) to help treat the PAP.  This is an experimental treatment that provides relief in some patients.  So far, after 5 weeks of inhaled GM-CSF, Kevin’s response to the treatment has been negligible and his health continues to decline.

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Kevin’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register