May 17, 2018 Latest post:
Nov 15, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
In February 2018, after weeks of breathlessness and weakness, Kevin was diagnosed with secondary Pulmonary Alveoli Proteinosis (PAP), a rare lung disease that affects 6 in every 1 million people. Since the diagnosis, Kevin has undergone two whole lung lavages, a process by which the lungs are washed out with saline in order to clear build-up of surfactant that collects on the alveoli, blocking oxygen from being distributed throughout the body. The lavages brought little relief and Kevin is on oxygen 24/7, unable to work and weakened by limits to his mobility.
Kevin was forced to end his successful business, McGill's Quality Decorating, earlier this year. He thanks his many loyal customers for their support that kept him in business for more than 30 years.
In early April, Kevin began the first in a 24-week therapy using inhaled GM-CSF (Leukine) to help treat the PAP. We are hopeful that he shows some signs of improvement as treatment progresses.