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11/29/2016 Latest post:
At 4 months of age I was diagnosed with congenital heart disease. I have a single ventricle and the anatomy of my heart is much different than most people's. Before the age of 3, I underwent 4 open heart surgeries and I was known as the miracle baby. The mere fact that I lived for 4 months without anyone knowing of my heart condition is nothing less than miraculous. What an amazing God we serve!
By God's grace alone, I have lived almost 28 years as a healthy, thriving individual. I am married, work full time, have 3 adorable (4 legged) children and enjoy traveling with my husband. However, the time has come for me to have open heart surgery again. On November 30th, 2016 I will be undergoing a big operation where my surgeon will be replacing my shunt (that I received as an infant), slightly relocating my IVC (inferior vena cava) into my pulmonary artery, fixing the widening of my SVC (superior vena cava) and placing epicardial pacemaker wires (should I need them in the future). While this is a big operation, my trust rests in the everlasting God that saved my life almost 28 years ago.
I would be lying if I said I wasn't scared, but again, God is ALWAYS in control. If nothing else, I pray God's name will be glorified through this process. I pray someone (maybe the parents of a child with congenital heart disease) will be encouraged to look no farther than our Heavenly Father for comfort, peace, and strength for the road that lies ahead.
Thank you for reading my story. I ask for nothing more than continuous prayers as this is a very trying time for myself, my husband and my family.