Karen Sordiff | CaringBridge

Karen Sordiff

I will start from the beginning, when I found out and how I found out and what I have. In 2013 while living in California I first noticed ringing and other noise in my ear, I would joke and say there construction  workers building something I don't know what they were building but there still building it.  Then a while later  I was taking a selfie I stuck my tongue out and noticed its crooked bumpy and ugly so self conscience of my ugly tongue so I went to the emergency room as well as Drs no one knew what was the problem. Some time later I moved to Arizona I'm not sure why I had no family or friends in Arizona the lord must of sent me.  My tongue still bothered me and I knew something was wrong I went to emergency room every night one a night  in different cities I was determined to find the problem. I went to hospitals in Casa grande and Tucson, the hospital in Tucson said to go to Phoenix they have a neurologist in there emergency room so the next day I went to Phoenix. 
When I arrived in Phoenix they ran a lot of tests they told me my pupils twitched my balance was off and my whole left side was affected I never realized all this so they ran mri's  cat scans some X-rays and other tests I was feeling good someone finally wanted to get to the bottom of my issues. They cared enough to to find out what is wrong after all my testing a team of Drs came in to my room and said they wanted to admit me for more tests so I was in the hospital for 8 days.
A team of 8 Drs looking so important always comming to check on me a lot more testing then the news the Drs came in they said they have goof news and bad news I don't remember the good news cause all I remember is the bad news I have a brain tumor it is a glomus tumor with jugulare foramen syndrome. This starts my journey.
Barrows institute which is where Phoenix hospital connected me with set me up with radiation and cyber knife cause they said they can not operate the tumor is wrapped around all my nerves and sits on my carotid artery, a couple weeks later they set up radiation and cyberknife for 10 days.
Since my procedure I had many more mri's all showed my tumor to still be there it was supposed to shrink or go away it did not all tho appears to not be growing during one of my mri's they found a second tumor it's called a schwannoma it sits on my balance nerve in between ear and brain, another rare tumor unrelated to the first I don't understand nor my dr why I developed 2 rare tumors. I'm in the wait and watch phase of my tumor since my Arizona diagnosis I moved to Washington and started going to Virginia mason in Seattle they seem to care they have ran more mri's they are contemplating 2 brain surgeries. But during my journey I had to give up so much my dancing which I loved I have very little memory I get confused I have facial twitches I get depressed I have no balance and my tongue paralyzed my swallowing and breathing compromised no hearing in left ear and in the long run can only bide me time my tumors aren't cancerous but are still terminal when they reach my brain stem because when my dr operates he can only trim my tumor so it's not so large he can't remove it it's too close to my caratid artery.

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