Kallen Danielson

First post: May 16, 2019 Latest post: Aug 29, 2019
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Kallen was diagnosed with a condition called Metopic Craniosynostosis. Metopic craniosynostosis is a type of non-syndromic craniosynostosis that occurs when the metopic suture fuses before birth. Which basically means the two skull pieces that form  and fuse together into his forehead fused before they were supposed to, in his case causing a point at the front of his head. Several issues can develop if this is left untreated which include brain and head growth issues. As of right now he has no motor skills development issues and he is right on track with other children his age. With this, we have been recommended to Mayo to have surgery. 
There are two types of surgeries that are done for this diagnosis. The first is called Endoscopic surgery: Using a lighted tube and camera (endoscope) inserted through small scalp incisions, the surgeon opens the affected suture to enable your baby's brain to grow normally. Compared with an open procedure, endoscopic surgery has a smaller incision, typically involves only a one-night hospital stay and usually does not require a blood transfusion. However due to Kallens age the more likely surgery that he is looking at having is what they refer to as Open surgery: The surgeon makes an incision in the scalp and cranial bones, then reshapes the affected portion of the skull. The skull position is held in place with plates and screws that are absorbable. Open surgery typically involves a three- or four-day hospital stay, and blood transfusion is usually necessary. It's generally a one-time procedure, but in complex cases, multiple open surgeries are often required to correct the baby's head shape.