Kai Fleming

First post: Oct 26, 2017 Latest post: Feb 7, 2018
So many of you have so many questions and Thomas and I thought this may be the best way to keep everyone updated.  First of all, we cannot express how grateful, honored and overwhelmed we feel with all the prayers, well wishes, love and positive thoughts we get everyday.  I wish we could thank each and everyone of you personally, so I hope this keeps everyone posted.
    Kai started having headache over the summer, but sporadic and I didn't think twice about them.  We went to the Outer Banks the beginning of October and she woke up in the middle of the night crying that her head hurt.  Otherwise, during the day she was completely normal, with an occasional headache.  She had had headaches after that and they seemed more frequent.  Last Sunday, she complained that her tongue was "tingly."  Kind of strange coming from a 5 year old, so I made an appointment with her pediatrician.  We saw Dr Blackstone Friday afternoon and he recommended an MRI.  That weekend she was playing, but she was sticking her tongue out and said when she put it back in her moth, it hurt.  So for 30 minutes she played with her tongue sticking out of her mouth.  The next morning she woke up crying that her head hurt, so Monday morning I contacted Dt Blackstone who recommend we admit her to the hospital since we were unable to get an MRI scheduled until November.  I asked him "Do you think it is necessary to admit her to the hospital just to get an MRI?"  We were admitted to the hospital that afternoon.  To get an MRI on a child they use general anesthesia with an LMA.  I kept questioning myself all day.  Do I put my child through all this?  "Am I that crazy Mom?!"  
     So she was diagnosed with a 3.5 cm tumor in her posterior fossa.  (In the back of her brain).  We are currently at DUMC and going in for surgery in the AM.  They are unable to tell if it is benign or malignant until they do the surgery and get the biopsy.  This past 24 hours has been a whilwind.  Kai is a sweet, kind, strong and brave little angel.  Everyone keeps asking what they can do.  Just keep praying and sending positive thoughts and love our way.  We love you all and thank you from the bottom of our hearts!

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