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Oct 2, 2017 Latest post:
Feb 14, 2018
On August 11th, 2017 Kaiden's dad was playing on the floor with Kaiden and when he grabbed him he felt a very hard lump on the left of his stomach. Unsure of what it was with a few theories in mind we ended up bringing Kaiden to Cambridge Emergency Room. The ER nurses have never seen a child his age come in with something like that. They called Children's Hospital and had us sent down to the Children's Hospital in Minneapolis, MN. When we arrived he was taken in for a CT scan. August 12th at 12:10am he was diagnosed with a tumor of the Kidney. Children's could not state what type of tumor this was but was more than certain that it was a Wilm's Tumor. Proceeding the details we were admitted into Children's. Kaiden's surgery was set for Monday the 14th of August to remove the mass and his left kidney with a 3 hour long procedure. Kaiden turned 15 months old the day of his surgery. It was a big day for him. The surgeon's would contact me every 30min to give me an update on the procedure. About 1.5 hours in I got a phone call stating that everything was going very well and let me know that his tumor had burst at one point and had attached itself to kaiden's intestine. In order to remove the mass from his intestine they had to be extremely careful so that they did not re-open the once already opened wound. About 30min later I got another phone call saying that they have successfully removed the mass from his intestine and have removed his kidney with no excessive bleeding or damage and that they were in the process of patching him up. Finally the 3 hour procedure was over and he was in recovery.
Kaiden had 3 IV's in and a tube in his nose that led down to his intestine to help with bowel movements for he was not expected to be able to use his stomach muscles. Kaiden managed to wrip out his nose tube just hours after his surgery and was amazingly able to sit up. With me in panic mode I had Aaron (kaiden's dad) call for the nurse. She couldn't believe that he was able to do all of this moving but what she didn't know is that we had a trooper. All was well as long as he was having bowel movements and was able to relieve gas. Which he did! On August 15th the Oncologist came in to let us know that he had Stage 3 Wilm's Kidney Cancer and that he would need a second surgery to place an access port in his chest for he would be needing Chemo. So on August 16th he had his second surgery for his port which took about an hour to place. Kaiden was then accessed through the port for his fluids which meant NO MORE ARM POKES! Yay! Kaiden had dropped almost 2lbs from the removal of his kidney and the tumor but that was expected. August 18th we sat down with Kaiden's chemo doctor and a nurse and were told that Kaiden is scheduled for his radiation of a duration of 6 days straight that would also include 2 chemo treatments. Kaiden has to do 28 weeks (7 months) of chemotherapy. We were then released from the hospital after the tour we had with Abbott which is where Kaiden's radiation took place. Since we have been home kaiden has had 6 radiation treatments and 5 chemo treatments. He has also started what they call "red medicine" and he is taking it all very well. Kaiden has been having a hard time gaining weight since he doesn't eat much and because of that, kaiden has to drink 3 PediaSure a day to help avoid getting a feeding tube put in. Luckily kaiden has gained some weight with the PediaSure and is almost back to his 23 lbs that he started off with before this all happened. Kaiden's expected remission date was Febuary 28th 2018 but is now March 7th 2018 because we had to miss a week of treatment to really low ANC counts. He does physical therapy every 2 weeks and has started occupational therapy which is a fine motors therapy. He does these to help the doctors monitor how the chemo is affecting his body. So far he is doing amazing! They expect his hand and feet to begin to not respond with his messenger neurons causing him to not be able to walk or use his hands very well. They say he should start to lose his hair around the 6th week of treatment but we have not seen any hair laying around mainly just that his hair is beginning to "dry out". We would like to say thank you to everyone who has been praying for us and helping us out when we need it.