Kaelynn Gail Ramsey My Journey

First post: 3/2/2017 Latest post: 5 hours ago
Kaelynn Gail Ramsey was born February 24th 2017. She weighted 4 pounds and 4 oz. She was 15.16 inches long. She was born at 33 weeks 6 days that 6 weeks 1 day early. It was an emergency cesection. When she was born I got to kiss her one time and off she went to baptist i was still on the table. Dad went to be with her. She got to baptist and they did test after test after test. Dad got to hold her for less then a min and she started to crash so on the ventalor she went. Saturday the 25th. I got a hall pass from forsyth so I could meet my daughter. Hall pass is only good for 4 hours but I had a wonderful nurse that day and I got 5 hours. In that time she has an echo of her heart and an upper gi done. Time for me to go back to my hospital a surgeon comes out and saids our daughter needs emergency surgery right now. Dad is rushing me back to forsyth so he can return to be there for our daughter. 3 1/2 hours later they were done with surgery. All went well. The next couple days we had our ups and downs. More test. This week she got tube taken out then put back in. She still has never eaten with is called npo. She has no bowel sounds so no food. She has a g tube and got a tunnel iv going into her heart. A Foley Cath in her bladder and has suction tube going to her stomach suction out. She has a sensor going into her nose watching her breath. But the last two day March 5 which by the way is our older sons birthday. Kaelynn got off her vent and I heard her cry. Today she got the suction line removed. Went down on her oxygen settings. I got to hold her for the first time. 10 days old today. YEAH!!!! Plus, i had three different nurses say they heard bowel sounds. That is a miracle. We are still praying she poops. They might even try to feed her a little tomorrow. Fingers cross. This is her story for the first week of life. There is probably so much I'm forgetting to add. But now I can write daily updates to let everyone know what is happening. Thank you everyone for your love and support. But more so want to thank everyone for all your prayers and continue prayers. She was diagnosed with MMIHS. So anyone is more then welcome to look it up. But we are staying very positive and learning with the doctors everyday. There is only 227 confirm case in the world of this syndrome.

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