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6/5/2017 Latest post:
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Most people know Kade's story, but for those that don't here goes....
Kade was a happy baby (sometimes, not so happy!) and some time between his 4 month check up and 6 month check up, we noticed he wasn't using his right hand like he was using his left. He didn't grab toys with it, never held anything in it, and when in a baby jumper, it would become lost down in the seat like he didn't know it was there. At our 6 month checkup, we asked the doctor about it. He sent us for tests and we eventually learned that Kade had a perinatal stroke. Perinatal stroke is a stroke that happens anytime in utero until 28 days post delivery. It is estimated that 1 in 2300 babies born have strokes, which is a higher statistic than juvenile diabetes, but is not as well known to most people.
Kade is 9 now and does have effects of the stroke. He has weakness on his right side, more pronounced in his hand and arm than leg, speech delays and some learning disabilities. He also has epilepsy. Kade started having seizures at about 18 months old. Most likely he had them prior to then, but they were subtle and we didn't know what to look for. He was put on medication and rarely had a seizure, usually only having one if he was outgrowing his medication dose. Surgery was presented to us as an option to possibly eliminate the seizures when Kade was about 3, but at the time he wasn't having many seizures and we weren't ready for it. Towards the end of last summer, Kade has been having about 1 seizure each month. We have been increasing his medication and they still come about once per month. We always knew surgery was an option, so we are now going ahead with it.
Please follow along on our journey for updates for how Kade does with the surgery. We are optimistic that he will be the same resilient kid he has been his entire life and he will come out of the surgery the same goofy person, just without having to deal with the scary, embarrassing seizures he's had to endure these past few months.