Our family's journey with Hypoplastic Left Heart Syndrome began at Judah's 20 week ultrasound, and sadly ended a year later when Judah passed away from complications. Thank you for your love and support. - Brittney and Abdiwak
Below is a timeline of Judah's most significant medical events. It does not include all the Cath Labs, intubations, etc. but does include all surgeries and major emergencies. Events listed with a * are surgeries, those listed with a ^ are times when we were blessed to be given more time with Judah after I thought we would lose him.
June 2, 2019 Judah was born and checked into the cardiac ICU
*June 7, 2019 Norwood Procedure, the first of three typical open heart surgeries to address HLHS. Added the Sano Shunt.
June 7 - July 13, 2019 ECMO life support
*June 17, 2019 Open heart surgery to remove ductal tissue from pulmonary arteries to increase pulmonary blood flow
*^June 25, 2019 Open heart surgery to add the BT Shunt to increase pulmonary blood flow
* July 30, 2019 GI surgery for G-J feeding tube
^Aug 8, 2019 Cardiac arrest after clotting BT Shunt
*Oct 3, 2019 Glenn Surgery, the second of three typical open heart surgeries to address HLHS.
^Oct 8, 2019 Clotted Glenn pathway, first stroke event with few outward symptoms