Our family's journey with Hypoplastic Left Heart Syndrome began at Judah's 20 week ultrasound, and will continue over the weeks, months, and years ahead. This site is intended to keep our loved ones informed of his upcoming heart surgeries, recovery, and adventures. Thank you for your love and support. - Brittney and Abdiwak
Below is a timeline of Judah's most significant medical events. It does not include all the Cath Labs, intubations, etc. but does include all surgeries and major emergencies. Events listed with a * are surgeries, those listed with a ^ are times when we were blessed to be given more time with Judah after I thought we would lose him.
June 2, 2019 Judah was born and checked into the cardiac ICU
*June 7, 2019 Norwood Procedure, the first of three typical open heart surgeries to address HLHS. Added the Sano Shunt.
June 7 - July 13, 2019 ECMO life support
*June 17, 2019 Open heart surgery to remove ductal tissue from pulmonary arteries to increase pulmonary blood flow
*^June 25, 2019 Open heart surgery to add the BT Shunt to increase pulmonary blood flow
* July 30, 2019 GI surgery for G-J feeding tube
^Aug 8, 2019 Cardiac arrest after clotting BT Shunt
*Oct 3, 2019 Glenn Surgery, the second of three typical open heart surgeries to address HLHS.
^Oct 8, 2019 Clotted Glenn pathway, first stroke event with few outward symptoms