Judah Yohannes

First post: Jun 6, 2019 Latest post: Jul 2, 2020
Our family's journey with Hypoplastic Left Heart Syndrome began at Judah's 20 week ultrasound, and will continue over the weeks, months, and years ahead. This site is intended to keep our loved ones informed of his upcoming heart surgeries, recovery, and adventures. Thank you for your love and support. - Brittney and Abdiwak

Below is a timeline of Judah's most significant medical events. It does not include all the Cath Labs, intubations, etc. but does include all surgeries and major emergencies. Events listed with a * are surgeries, those listed with a ^ are times when we were blessed to be given more time with Judah after I thought we would lose him.

June 2, 2019    Judah was born and checked into the cardiac ICU

*June 7, 2019   Norwood Procedure, the first of three typical open heart surgeries to address HLHS. Added the Sano Shunt.

June 7 - July 13, 2019   ECMO life support

*June 17, 2019   Open heart surgery to remove ductal tissue from pulmonary arteries to increase pulmonary blood flow

*^June 25, 2019   Open heart surgery to add the BT Shunt to increase pulmonary blood flow

* July 30, 2019   GI surgery for G-J feeding tube

^Aug 8, 2019   Cardiac arrest after clotting BT Shunt

*Oct 3, 2019   Glenn Surgery, the second of three typical open heart surgeries to address HLHS.

^Oct 8, 2019   Clotted Glenn pathway, first stroke event with few outward symptoms

^Oct 17, 2019   Decompressing vein requiring emergency bedside angiogram

Oct 18, 2019   Second stroke event, weakening left side of body

*Feb 19, 2020   GI surgery to replace feeding tube with G-J Mic-Key Button setup

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