Judah Yohannes

First post: Jun 6, 2019 Latest post: Nov 19, 2020
Our family's journey with Hypoplastic Left Heart Syndrome began at Judah's 20 week ultrasound, and sadly ended a year later when Judah passed away from complications.  Thank you for your love and support. - Brittney and Abdiwak

Below is a timeline of Judah's most significant medical events. It does not include all the Cath Labs, intubations, etc. but does include all surgeries and major emergencies. Events listed with a * are surgeries, those listed with a ^ are times when we were blessed to be given more time with Judah after I thought we would lose him.

June 2, 2019   Judah was born and checked into the cardiac ICU

*June 7, 2019   Norwood Procedure, the first of three typical open heart surgeries to address HLHS. Added the Sano Shunt.

June 7 - July 13, 2019   ECMO life support

*June 17, 2019   Open heart surgery to remove ductal tissue from pulmonary arteries to increase pulmonary blood flow

*^June 25, 2019   Open heart surgery to add the BT Shunt to increase pulmonary blood flow

* July 30, 2019   GI surgery for G-J feeding tube

^Aug 8, 2019   Cardiac arrest after clotting BT Shunt

*Oct 3, 2019   Glenn Surgery, the second of three typical open heart surgeries to address HLHS.

^Oct 8, 2019   Clotted Glenn pathway, first stroke event with few outward symptoms

^Oct 17, 2019   Decompressing vein requiring emergency bedside angiogram

Oct 18, 2019   Second stroke event, weakening left side of body

*Feb 19, 2020   GI surgery to replace feeding tube with G-J Mic-Key Button setup

March 10, 2020   Placed on heart transplant list

^June 30, 2020   Decompensation, complete heart block, and emergency procedure to place pacing wire

*July 2, 2020   Pacemaker surgery

July 22, 2020   Judah passed away peacefully surrounded by family

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