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Nov 13, 2020 Latest post:
47 minutes ago
“When life throws us unexpected challenges, our tribal circle of friends and family hold a place for healing that is limitless.” - thank you, Jane
“I’m a firm believer in the power of positivity and mind over body” -thank you, Joe
Dear friends, we are so thankful of your outpouring of support. We would like to keep you informed of JP’s condition. He spent one week at UCSF Benioff Children’s Hospital in Oakland, admitted on Friday, November 6th with high blood pressure. He was diagnosed with pheochromocytoma (pheo) with Bilateral adrenal tumors. Both of his adrenal glands have a large tumor, one about the size of a lacrosse ball, the other a racquetball. The primary goal is to remove these tumors via surgery. Most likely, the adrenal glands will be removed completely. We are aiming for the week of November 30. Until then he is at home, living quite normally (even fighting with his brother!). His Covid vulnerability is normal, meaning same as the rest of us.
The other major concern for us and the doctors is whether the cancer has spread. The vast majority of pheo tumors do not spread to other parts of the body, but the possibility is there. The initial CT scan shows four small nodules in his lungs. These could be cancerous cells, but they also could be remnants of a recent or distant cough. We have a PET scan scheduled Wednesday, November 18th to potentially learn more about the lungs and other organs.
We feel so lucky to have our team of doctors at Children’s Hospital, led by oncologist Anu Agrawal. Thanks to all of their help and yours.........WE GOT THIS!!!!!!