Josh Glenn

First post: Jul 16, 2022 Latest post: Apr 4, 2024

All of his life, Josh has known he has HHT (Hereditary Hemorrhagic Telangiectasia) a blood vessel disease. It runs in his family and they affectionately refer to it as "the bloody nose disease". When Madalinn (our daughter) was diagnosed with Pulmonary Hypertension she was tested for the genes that cause HHT and was positive for ACRLV1.  It has been determined that that gene is what caused her PH because of disease in her pulmonary arteries.  


Once she tested positive, Josh and our two sons were also tested and found positive for ACRLV1.  With HHT it is highly recommended to have a brain MRI, lung scans, and blood work to check the liver so they can find any malformed vessels (AVMs) that may need fixed to prevent future problems.  In April Josh and the boys went to Cincinnati to have all the recommended scans done. 


After the scans on April 29th in Cincinnati, the neurologist met with us and told us that Josh has a large AVM in the left frontal lobe of his brain.  It measures 7cm x 4.9cm x 4.5cm, the size of a clementine.  We were told his was born with it and that it is amazing that he has lived with no symptoms for 40 years.  If left untreated Josh would have an 80% chance of stoke in his life.  So, we found a vascular neurosurgeon at Ohio State University Hospital who felt confident that he could do multistep procedures to get rid of this AVM.  


On July 14 we went in for Josh's first procedure.  It went well and the doctor came out and told us he was about to shrink the AVM by 30% and Josh was recovering well.  However, not too much later everything changed.  The AVM began to bleed and Josh suffered from an inter cranial hemorrhage (AKA Stroke).  He became unresponsive.  At the start of keeping this journal of updates he is in the Critical Care Unit in a coma.  One doctor said, "this is very critical, but not without hope."  We know that's right!  Jesus Christ is our Hope!  


We know that thousands of you are praying and we are so very grateful!  Thank you for loving and caring for our family in yet another health crisis this year.
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