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Sep 8, 2017 Latest post:
Mar 22, 2018
Thank you for visiting Jordens health website. Here’s a little info about Jorden, my daughter. Jorden is now 24 years young. She has grown into a very wonderful young lady of who I am so proud of everyday. when Jorden was six she was diagnosed with Evans Syndrome. Please feel free to google it for the most accurate info. Jorden has had 20+ episodes requiring blood transfusions, high doses of steroids etc. when Jorden was 12 she had an episode of hemolytic anemia caused by the Evans. This resulted her being in Pediatric Critical Care unit for a total of four months at LHSC. She had episodes requiring a breathing tube,24 blood transfusions and also hemp and then PD dialysis. The hope was always that Jordens kidneys would recover enough to allow her to be off dialysis. Prayers were answered and after a few months Jordens kidneys were able to do there job “good enough”. A lot has happened to Jorden since that time... she graduated high school, then graduated her college program. She mastered the art of living independently while in college! Jorden got (and still has) a magnificent boyfriend ,Jesse! ( that has been a seven year romance!!! Jorden has a part time job at McDonalds as a cheerful employee, and she even co-parents a wonderful English Bulldog, Emma with me(her mom). So where does that leave the story now? well it’s just a new chapter, this story is far from being complete. Jordens kidneys are very tired. Over the past 12 years her kidney function has been thought to be between 25-60 percent. (It was always declining) but currently her kidney function is about 12-15 percent. It is time for Jorden to require a kidney transplant. Of course these things do take time. Procedures, tests, etc are all be conducted as the months have passed. The plan B would have Jorden begin hemp dialysis (if and when needed) to hold her tight until all things are in place for a living donor transplant. Who knew that we are born with two kidneys but only need one good working one! So her story continues! The plot thickens with Dec 1 2017 Jorden will have surgery to have a AV fistula (you may need google again) inserted under her skin in her arm just in case she does need dialysis in the meanwhile. We are very hopeful that if it is there she won’t need it, but it’s there. We are hopeful that with all those coming forward to the transplant team that a donor will be matched. It sounds like great progress is being made! As her family, we are completely honoured to those who have come forward and willing to share their parts. We are thrilled at the love and protection for our Jorden that everyone displays. Please keep her in your heart and prayers, as well as her donor(s) as things continue to progress towards transplant. She truly is our miracle girl and we are excited to have you reading her updates.